2015-11-30

ICPSR congratulates Assistant Director Mary Vardigan upon her retirement

Vardigan at her retirement celebration on November 18, 2015.
Today we salute dedicated data steward Mary Vardigan, Assistant Director of ICPSR, upon her retirement.

Mary has had a significant hand in shaping the organization for 30 years. In addition to serving as ICPSR editor and directing ICPSR’s Collection Delivery Unit, Mary also has served as Director of the Data Documentation Initiative (DDI), and is involved in other international projects related to data stewardship, including the Data Seal of Approval, the Research Data Alliance, and various efforts to promote data citation.

Congratulations, Mary!

Mary Vardigan and Peter Granda on the evolution of ICPSR: https://youtu.be/vo8OtTufRKE

New Releases through 2015-11-29

Below is a list of new data collection additions to the ICPSR data archive along with a list of released data collections that have been updated:

Updates

2015-11-24

Chinese Longitudinal Healthy Longevity Survey (CLHLS), 1998-2012 (ICPSR 36179)

Now Available from NACDA


Principal Investigator(s): 
Summary:
The Chinese Longitudinal Healthy Longevity Survey (CLHLS) provides information on health status and quality of life of the elderly aged 65 and older in 22 provinces of China in the period 1998 to 2012. The study was conducted to shed light on the determinants of healthy human longevity and oldest-old mortality. To this end, data were collected on a large percent of the oldest population, including centenarian and nonagenarian; the CLHLS provides information on the health, socioeconomic characteristics, family, lifestyle, and demographic profile of this aged population. Data are provided on respondents' health conditions, daily functioning, self-perceptions of health status and quality of life, life satisfaction, mental attitude, and feelings about aging. Respondents were asked about their diet and nutrition, use of medical services, and drinking and smoking habits, including how long ago they quit either or both. They were also asked about their physical activities, reading habits, television viewing, and religious activities, and were tested for motor skills, memory, and visual functioning. In order to ascertain their current state of health, respondents were asked if they suffered from such health conditions as hypertension, diabetes, heart disease, stroke, cancer, emphysema, asthma, tuberculosis, cataracts, glaucoma, gastric or duodenal ulcer, arthritis, Parkinson's disease, bedsores, or other chronic diseases. They were also asked if they needed assistance with bathing, dressing, toileting, or feeding, and who provided help in times of illness. Other questions focused on siblings, parents, and children, the frequency of family visits, and the distance lived from each other. Demographic and background variables include age, sex, ethnicity, place of birth, marital history and status, history of childbirth, living arrangements, education, main occupation before age 60, and sources of financial support.

Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Disabling Process Study: 2001-2002 (ICPSR 36203)

Now Available From NACDA:

Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE) Disabling Process Study: 2001-2002 (ICPSR 36203)

Principal Investigator(s): 
Summary:
This collection sought to examine relationships among components of the Enabling-Disabling Model as presented in the 1997 Institute of Medicine report, Enabling America: Assessing the Role of Rehabilitation Sciences. The Enabling-Disabling Model includes the following primary components: pathology, impairment, functional limitation, disability, and quality of life. In this model, disability is proposed to be influenced by pathology, impairment, and functional limitation. Disability is also seen as a function of the interaction between the person and the environment. This investigation examined relationships within the Enabling-Disabling Model in a random sample of Mexican American older adults. The specific aims were to: (1) examine the interrelationships among the components of the Enabling-Disabling Model over time in older Mexican-American adults, and (2) use components of the Enabling-Disabling Model to expand our understanding of the natural history of aging and to predict health related quality of life in older Mexican American adults. Data were collected from 621 older adults who were participating in the Hispanic Established Populations for Epidemiologic Studies of the Elderly (EPESE). Only subjects who were physically capable of safely completing the muscle strength measures were included in the study. Baseline interviews were collected on this subsample in 2001 during Wave 4 (ICPSR 4314) of the larger Hispanic EPESE study. Follow-up data were collected in 2002 from 551 participants. Data were collected on information such as respondents' health status, activities of daily living and ability to perform tasks. Demographic and background information include age, relationship status, gender, marital status and household composition.
Download this study at: 
Persistent URL: 

2015-11-23

New Releases through 2015-11-22

Below is a list of new data collection additions to the ICPSR data archive along with a list of released data collections that have been updated:

New Additions

Updates

2015-11-19

ICPSR accepting applications for 2016 Summer Internship Program!

Applications are being accepted for the 2016 ICPSR Summer Undergraduate Internship Program, an intensive, 10-week program in Ann Arbor, Michigan, for students interested in social science research.
Apply now through the ICPSR online application portal. To complete the application form, students must answer a few questions; upload a cover letter, resume, and list of relevant courses; and provide contact information for two recommending college faculty or staff members, or employer references. The recommendations must be completed through the ICPSR recommendation portal.

The deadline for all materials is January 31, 2016.

To be eligible, a student must:

  • Have an expected graduation of December 2016 or later
  • Possess undergraduate standing and have completed sophomore year in a social science or mathematics major, with interests related to one of ICPSR's Thematic Collections
International students are welcome to apply.  

Visit our website or view the flyer (PDF, 466 KB) for more information and examples of research projects done by past ICPSR interns.


2015-11-17

New study available on Puerto Rican infant health; Datafiles added to China Multi-Generational Panel Datasets Series


The following studies were recently released through DSDR:

New Studies:

Puerto Rican Maternal and Infant Health Study (PRMIHS), 1994-1995 [ICPSR 36238]  

The PRMIHS is a cross-sectional study designed to provide information on the determinants of poor infant health among Puerto Ricans. The dataset features personal interview data from 2,763 mothers of Puerto Rican infants sampled from the 1994 and 1995 birth and infant death records of six United States vital statistics reporting areas and the Commonwealth of Puerto Rico.

Data include information on:

  • Respondent demographics, sexual history, use of contraception, age at conception, prenatal care and nutrition, substance abuse, and overall health;
  • Infant health and well-being including respondents' reporting of recurrent health issues, required medical treatments, immunizations, any accidents or sustained injuries, attainment of infant development milestones; and
  • Migration history, family composition, partner involvement, social support structures, and receipt of any public financial assistance for food, housing, and/or medical care.

Updated Studies:


China Multi-Generational Panel Dataset, Shuangcheng (CMGPD-SC), 1866-1913 [ICPSR 35292]
The CMGPD-SC has been updated to include two additional filesets:

  • The Landholding File (dataset 6), which contains information on individual landholding including the amount, category, and type of registered land; and
  • A restricted version of the Landholding File (dataset 7), which contains additional personal information from landholders.
The CMGPD-SC provides longitudinal individual, household, and community information on the demographic and socioeconomic characteristics of a resettled population living in Shuangcheng, a county in present-day Heilongjiang Province of Northeastern China, for the period from 1866 to 1913. More information on the updates to the CMGPD-SC study is available in the Version History section of the study home page.

Relationship Dynamics and Social Life (RDSL) Study [Michigan], 2008-2012 [ICPSR 34626]
The following changes have been made to the RDSL Baseline and Supplement Survey Data [Public] file:

  • Addition of E58_F3, a baseline variable indicating whether the respondent is currently married or engaged that was created from variables E58 (Currently Married) and F3 (Currently Engaged);
  • Addition of S1_E58_F3, a supplemental variable indicating whether the respondent is currently married or engaged that was created from supplemental variables S1_E58 (Currently Married) and S1_F3 (Currently Engaged); and 
  • Removal of variables F1, F3, F26, and S1_F3.
The codebook (identical for all three parts) was also updated with a new data crosswalk that correctly reflects the availability of variables within the public-use, restricted, and highly-restricted datasets.

The Relationship Dynamics and Social Life (RDSL) Study aims to investigate the types of romantic relationships that produce early and/or unintended pregnancies.

2015-11-16

NIH Issues Request for Information on Enhancing Timely Data Sharing from NICHD Funded Clinical Studies

The following Request for Information has been posted to the NIH website


Request for Information on Enhancing Timely Data Sharing from NICHD Funded Clinical Studies

Notice Number: NOT-HD-15-034

Key Dates
Release Date:   November 10, 2015
Response Date: December 21, 2015

Related Announcements
None  

Issued by
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

Purpose
The Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) is soliciting comments and suggestions from the public on ways to enhance the timely sharing of high quality data generated by NICHD funded clinical studies. Responses to this Request for Information (RFI) will be used to inform NICHD policy development.

Background
Data sharing has been a longstanding expectation of the research that the National Institutes of Health (NIH) funds and supports (e.g., see the Final NIH Statement on Sharing Research Data published in the NIH Guide in 2003 (http://grants.nih.gov/grants/guide/notice-files/NOT-OD-03-032.html)).  Data sharing can achieve many important goals for the scientific community, including but not limited to:

  • promoting new research, testing of new or alternative hypotheses and methods of analysis
  • facilitating education of new researchers
  • enabling the exploration of topics not envisioned by the initial investigators
  • supporting re-analysis and reproducibility of findings

In NIH's view, all data should be considered for data sharing, consistent with applicable NIH policies, laws, and regulations. Data should be made as widely and freely available as possible while appropriately safeguarding the privacy of participants, and protecting confidential and proprietary data.

The 2003 NIH data sharing policy discussed making data available for sharing no later than the acceptance for publication of the main findings from the final data set. More recently, the Food and Drug Administration Amendments Act of 2008 Section 801 established a legal requirement that clinical trials that are designated as “applicable clinical trials” must have data submitted to clinicaltrials.gov. The primary outcome results must be submitted 12 months following completion of the last study designated assessment or the sponsor may be subject to penalties. In addition, medical journal editors noted publicly that submission and posting of clinical trial results in compliance with the legal requirements of clinicaltrials.gov would not compromise the ability to publish the research.

Information Requested
This RFI invites the scientific community, health professionals, and the general public to provide comments and suggestions on potential policies regarding timely data sharing from NICHD funded studies. For this purpose, the data available for sharing refers to line level or patient level de-identified data suitable for construction of analytic datasets and not summary or aggregate data such as used to prepare tables for publications.

Your comments can include but are not limited to the following areas:

  • Using the milestone of 12 months following the last study designated assessment as the general expectation for making primary outcome data available for sharing for all NICHD clinical studies.  Clinical studies are defined here as all phases of clinical trials, observational studies of clinical or high-risk populations, and epidemiological studies
  • Potential operational and scientific barriers and potential solutions to data sharing when using the milestone of 12 months following the last study designated assessment
  • Any other aspect of the timing of data sharing that may be relevant. (Some topics related to data sharing such as privacy, security, and participant permission and consent are considered outside the scope of this RFI).
How to Submit a Response
Responses will be accepted until December 21, 2015. All responses must be submitted via this URL: https://grants.nih.gov/grants/rfi/rfi.cfm?ID=51.

The submitted information will be reviewed by the NICHD and used at its discretion.  Respondents are advised that the Government is under no obligation to acknowledge receipt of the information provided and will not provide feedback to respondents. This RFI is for planning purposes only and should not be construed as a solicitation for applications or proposals, or as an obligation in any way on the part of the United States Federal government. The Federal government will not pay for the preparation of any information submitted for the government’s use.  Additionally, the government cannot guarantee the confidentiality of the information provided.

Inquiries
Please direct all inquiries to:

Steven Hirschfeld, MD PhD
Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)
Telephone: 301-496-0044
Email: hirschfs@mail.nih.gov

New Releases through 2015-11-15

Below is a list of new data collection additions to the ICPSR data archive along with a list of released data collections that have been updated:

New Additions

Updates

2015-11-11

Kokos Markides Earns GSA’s 2015 Robert W. Kleemeier Award

Markides Earns GSA’s 2015 Robert W. Kleemeier Award


Contact: Todd Kluss
tkluss@geron.org
(202) 587-2839
The Gerontological Society of America (GSA) — the nation’s largest interdisciplinary organization devoted to the field of aging — has chosen Kyriakos S. “Kokos” Markides, PhD, of the University of Texas Medical Branch as the 2015 recipient of the Robert W. Kleemeier Award.
This distinguished honor is given annually to a GSA member in recognition for outstanding research in the field of gerontology. It was established in 1965 in memory of Robert W. Kleemeier, PhD, a former president of the Society whose contributions to the quality of life through research in aging were exemplary.
The award presentation will take place at GSA’s 68th Annual Scientific Meeting, which will be held from November 18 to 22 in Orlando, Florida. This conference is organized to foster interdisciplinary collaboration among researchers, educators, and practitioners who specialize in the study of the aging process. Visit www.geron.org/2015 for further details.
At the University of Texas Medical Branch, Markides is the Annie and John Gnitzinger Distinguished Professor of Aging, and the director of the Division of Social and Behavioral Sciences in the Department of Preventive Medicine and Community Health. He also is the editor of the Journal of Aging and Health, which he founded in 1989.
He is the author or co-author of over 340 publications, most of which focus on aging and health issues in the Mexican American population, as well as minority aging issues in general. His research has been funded continuously by the National Institutes of Health since 1980. Markides currently is the principal investigator of the Hispanic EPESE (Established Population for the Epidemiological Study of the Elderly), a longitudinal study of the health of 3,952 older Mexican Americans from the five Southwestern states.
Markides is credited with coining the term “Hispanic Epidemiological Paradox” (along with Jeannine Coreil), which is currently the leading theme in Hispanic health.  It refers to the epidemiological finding that Hispanic and Latino Americans tend to have health outcomes that paradoxically are comparable to, or in some cases better than, those of their U.S. white counterparts, even though Hispanics have lower average income and education. The Institute for Scientific Information has listed Markides among the most highly cited social scientists in the world.
He was the recipient of the Distinguished Mentorship in Gerontology Award from GSA’s Behavioral and Social Sciences Section in 2006; the Distinguished Professor Award in Gerontology and Geriatrics from the University of California, Los Angeles, in 2009; and the inaugural recipient of the Pearmain Prize for outstanding service to the field of aging from the Roybal Institute on Aging at the University of Southern California in 2010. Markides also is a GSA fellow, which is the highest class of membership within the Society.
Kokos Markides is the PI of the Hispanic Established Populations for the Epidemiologic Study of the Elderly (HEPESE) supported by NACDA.
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The Gerontological Society of America (GSA) is the nation's oldest and largest interdisciplinary organization devoted to research, education, and practice in the field of aging. The principal mission of the Society — and its 5,500+ members — is to advance the study of aging and disseminate information among scientists, decision makers, and the general public. GSA’s structure also includes a policy institute, the National Academy on an Aging Society, and an educational branch, the Association for Gerontology in Higher Education.
- See more at: https://www.geron.org/press-room/press-releases/2015-press-releases/522-markides-earns-gsa-s-2015-robert-w-kleemeier-award#sthash.BcyoSbXn.dpuf

2015-11-09

New Releases through 2015-11-08

Below is a list of new data collection additions to the ICPSR data archive along with a list of released data collections that have been updated:

Updates

2015-11-03

NICHD launches Data and Specimen Hub (DASH)

The NICHD Data and Specimen Hub (DASH) is a centralized resource for researchers to store and access de-identified data from NICHD-funded research studies for the purposes of secondary research use. It serves as a mechanism for NICHD-funded extramural and intramural investigators to share research data from studies in accordance with the NIH Data Sharing Policy and the NIH Genomic Data Sharing Policy.

Learn more about NICHD DASH
Access NIH Notice about NICHD DASH

2015-11-02

New Releases through 2015-11-01

Below is a list of new data collection additions to the ICPSR data archive along with a list of released data collections that have been updated:

New Additions

Updates