2014-10-20

New Releases through 2014-10-19

Below is a list of new data collection additions to the ICPSR data archive along with a list of released data collections that have been updated:

New Additions

Updates

Note: Additional SAMHDA studies may be available though they are not listed in this email/web site announcement.

2014-10-17

SAMHDA announces access to confidential data via the data portal beginning November 15

The Substance Abuse and Mental Health Data Archive (SAMHDA), on behalf of the Center for Behavioral Health Statistics and Quality (CBHSQ), Substance Abuse and Mental Health Services Administration (SAMHSA), announces a call for applications for remote access to Drug Abuse Warning Network (DAWN) and National Survey on Drug Use and Health (NSDUH) confidential data for research purposes. 
Qualified research organizations are encouraged to submit applications between November 15 and December 15, 2014 for access to confidential DAWN or NSDUH data through the Data Portal. Research projects should propose use of:
  • DAWN 2004-2011 Emergency Department data;
  • DAWN 2003-2010 Medical Examiner data; 
  • NSDUH 2004-2013; or
  • NSDUH 2008-2012 Adult Clinical Interview data.
The Data Portal is a secure virtual computing environment facilitated through the Substance Abuse and Mental Health Data Archive (SAMHDA). It is designed to provide authorized researchers access to confidential data for approved research projects. The goal of the Data Portal is to maximize the use of data collected by CBHSQ for important research while conforming to Federal law and protecting identifiable data from disclosure.


2014-10-15

NEW PUBLICATION - SEBAS

Researchers for the Social Environment and Biomarkers of Aging Study (SEBAS) have just published a informative cohort profile of their study. SEBAS is a nationally representative longitudinal survey of Taiwanese middle-aged and older adults. It adds the collection of biomarkers and performance assessments to the Taiwan Longitudinal Study of Aging (TLSA), a nationally representative study of adults aged 60 and over, including the institutionalized population.

The article is published in the International Journal of Epidemiology and represents an excellent introduction to the purpose, research findings and value of SEBAS as a research study. 
 
Cornman, J.C., D.A. Glei, N. Goldman, M-C. Chang, H-S. Lin, Y-L. Chuang, B-S. Hurng, Y-H. Lin, S-H. Lin, I-W. Liu, H-Y. Liu, M. Weinstein.  (2014).  “Cohort Profile: The Social Environment and Biomarkers of Aging Study (SEBAS) in Taiwan.”  International Journal of Epidemiology.  doi: 10.1093/ije/dyu179
 
The article can be viewed electronically at: http://ije.oxfordjournals.org/content/early/2014/09/08/ije.dyu179.abstract if your institution subscribes to this journal. You can also visit the SEBAS website at Georgetown University for more information about accessing this article and the SEBAS study itself.  (http://cph.georgetown.edu/taiwan.html )
 
Any researcher interested in gaining access to the SEBAS study is welcome to contact the NACDA Director directly atjmcnally@umich.edu and we will assist you in obtaining this study for your own research.  

2014-10-14

NAHDAP Announces Webinar on Drug Use Among Young American Indians

Join us on November 13, 2014, for a webinar on Drug Use Among Young American Indians - Exploring the Data.

The goal of the workshop is to expose investigators to the Drug Use Among Young American Indians: Epidemiology and Prediction study and the data available for 2001-2006 and 2009-2013. This data set contains detailed information on 16,590 adolescents in 7th to 12th grade in schools that had over 20% of its population self-identified as American Indian. Over 52% of the respondents reported being American Indian.

The purpose of the webinar is to:

1. Describe the Drug Use Among Young American Indians study methods and sample
2. Describe the scales used in the questionnaires
3. Discuss possible areas of investigation that the study might be useful for addressing
4. Provide specific advice related to the use of these data sets for certain types of analyses

Presenters:
Randall Swaim, PhD, Colorado State University
Linda Stanley, Ph.D., Colorado State University
Robert Choate, University of Michigan, ICPSR

This webinar is free and open to the public.

Date: Thursday, November 13, 2014
Time: 1:00 PM - 2:00 PM EST

Space is limited.
Reserve your Webinar seat now at:
https://www2.gotomeeting.com/register/412632682

After registering you will receive a confirmation email containing information about joining the Webinar.

2014-10-10

Data from the National Intimate Partner and Sexual Violence Survey (NISVS) now available

The National Archive of Criminal Justice Data (NACJD) is pleased to announce the release of the National Intimate Partner and Sexual Violence Survey (NISVS) General Population Survey Raw Data, 2010 (ICPSR study 34305).

The National Intimate Partner and Sexual Violence Survey is an ongoing, nationally representative survey that assesses experiences of sexual violence, stalking, and intimate partner violence among adult women and men in the United States and for each individual state. The primary objectives of the survey are to describe the prevalence and characteristics of sexual violence, stalking, and intimate partner violence in the United States; who is most likely to experiences these forms of violence; the context in which sexual violence, stalking and intimate partner violence are experienced; and the consequences and impacts of these forms of violence. The study was funded by the Department of Health and Human Services, Centers for Disease Control and Prevention, National Center for Injury Prevention and Control with support from the National Institute of Justice and the Department of Defense.

The data are restricted from general dissemination. Users interested in obtaining these data must complete a Restricted Data Use Agreement application and specify the reasons for the request. Please visit the study home page for more information about the study and access: http://doi.org/10.3886/ICPSR34305.

2014-10-09

DSDR Director attends NCI Workshops in Rockville, MD on October 6-8, 2014

The DSDR director, Mary McEniry, attended two workshops held by the National Cancer Institute (NCI) on October 6-8, 2014 in the Washington, D.C. area.


The first workshop on October 6-7, entitled "Novel Approaches and Challenges to Data Harmonization", was sponsored by the NCI's Epidemiology and Genomics Research Program (EGRP).

An overview from the workshop website:

The breadth and scope of studies utilizing an epidemiologic framework has grown significantly during the last few decades. This trend is mainly due to the increasing complexity of the research questions being asked and the consequent need to coalesce data across many studies. In fact, the case has been made that "integrative epidemiology"--the integration and analysis of heterogeneous and multi-layered data sets—may be the key to advance the practice of epidemiology in the twenty-first century.

The current climate of scarce resources necessitates assembling these expansive and heterogeneous data sets through extensive multi-disciplinary collaboration or consortia. Throughout the last decade, consortia-based research has grown exponentially, has contributed to a better understanding of the complex etiology of cancer, and has provided fundamental insights into key environmental, lifestyle, clinical, and genetic determinants of these diseases and their outcomes. Using existing epidemiology data sets and complementing them with newly acquired genomic, clinical and other types of data can empower researchers to address important health issues more expeditiously and in a more cost-effective manner than through the creation of new large research infrastructures. Data harmonization, or the process of assessing compatibility of data accrued from independent sources, is an essential step to support these integrative analyses.

The goals of the Novel Approaches and Challenges to Data Harmonization Workshop were:
  1. To explore the theory and practice of multi-level data harmonization;
  2. To consider available tools and new approaches;
  3. To review representative case-studies; and
  4. To develop recommendations for best practices.

The second workshop on October 8, entitled "NCI Workshop on Broadening Epidemiologic Data Sharing", was also sponsored by the EGRP.

An overview from the workshop website:

Broad accessibility to peer-reviewed scientific publications has ushered in an era of open access in the 21st century. A 2013 memorandum from the Office of Science and Technology Policy directing Federal agencies to "support increased public access to results of research... funded by the Federal Government" suggests that broader access to scientific data will exist in the near future. There have been major advances in genomic data sharing with the establishment of new infrastructure, resources, and policies. However, additional approaches are needed for sharing individual-level epidemiologic data to enhance the pace of scientific progress in cancer epidemiology.

The purpose of this workshop is to identify opportunities and resolve barriers to facilitate controlled access by the scientific community to epidemiologic data from observational studies. The meeting will bring together key stakeholders from EGRP, the Division of Cancer Control and Population Sciences (DCCPS), the Division of Cancer Epidemiology and Genetics (DCEG), the NCI Cohort Consortium, and the extramural scientific community. Attendees will be invited to engage in thoughtful and candid discussion about how to facilitate and support increased sharing of epidemiologic data.

The workshop will provide a forum to further the discussion on data sharing and corresponding challenges. The goals of the workshop are to:
  1. Identify challenges and possible solutions to sharing epidemiologic data;
  2. Identify key elements and potential epidemiologic data sharing model(s); and
  3. Identify resources needed to facilitate increased epidemiologic data sharing.

Asian Population Association (APA) 3rd International Conference, July 27-30, 2015, Kuala Lumpur, Malaysia

The Asian Population Association (APA) will be holding its Third International Conference on July 27-30 in Kuala Lumpur, Malaysia. The deadline for submission of abstracts is October 15, 2014. APA encourages researchers to submit their abstracts by this date.

More information about the conference can be found in the flyers below. Details on the conference, including instructions for online submission of abstracts and a message from the APA president can be found on the APA website.

Call for Abstracts Flyer

Conference Announcement Flyer